Oxygen & nasogastric tubes… hallelujah, Amen!
February 8Every so often, an incident occurs that reaffirms why you’re here working in Malawi. This was one of them.
Culturally, both the delivery of oxygen and the use of nasogastric tubes (small tubes that run through the nose into the stomach to facilitate feeding in patients who are unable to take nutrition orally) are very much frowned upon. The precise reasons are elusive, although in short they are seen as a cause of death, rather than a treatment method, and the phenomenal lack of education here makes changing this perpetuated myth an extremely difficult undertaking. And one can hardly blame mothers when they watch the sickest of children, of whom the vast majority die, invariably receive oxygen and often a nasogastric tube. A real catch-22, given we cannot use them in a more widespread manner in order for them to be seen more as routine care due to lack of resources and funding. The upshot is that a disturbingly large number of families not only refuse both of these managements for their terribly sick children, but will remove them and sometimes even abscond as a result.
Magdalena was a particularly unwell girl of about 12 years with miliary (widespread) tuberculosis. She had severe malnutrition causing wasting to the point where she didn’t even have the muscle bulk to sit up and debilitating pressure sores as a result. She was with us in the malnutrition unit for around three months. It was a daily battle to ensure she was receiving adequate nutrition – along comes the evil spectre of a nasogastric tube – as well as trying to treat secondary infections such as pneumonia all too frequently – bring on evil number two, oxygen. As you can imagine, the circular arguments with her and her mother were somewhat disheartening, not to mention frustrating. My only solace to our interactions was Magdalena’s laugh, which broke the look of sheer anguish on her weathered face every time I tried out my rather infantile Chichewa. Anyway, after a protracted stay on our ward, she finally got to the point where we felt home was appropriate… and by then she could even greet me in English. That was some time in November.
Sitting in the malnutrition ward today going through the daily round of now over ninety patients (slightly ridiculous numbers for a twenty bed ward) Magdalena and her mother came to visit. After gaining the attention of all the other mothers on the ward – fathers being a very rare presence – her mother began to tell Magdalena’s story from her time in the ward. Although my Chichewa is still far from conversational, I could understand the drift of what was said. Despite all the daily tussles we had about her daughter’s care and her ongoing distrust of
western medical care, here she was extolling the virtues of both the nasogastric tube and oxygen, knowing full well the misplaced cultural beliefs that she herself also shared. She dramatically described how I would plead every day and she would refuse, then finally how she acquiesced. And like the stunned disbeliever dropping to the floor as they finally feel the touch of god through the preacher’s fingers in those zany evangelical services, Magdalena rose from her chair (still quite wasted and unsteady, but with no help) to the whoops of delight from the onlookers.
“Hallelujah!”
“Amen!” came the cries, clapping and Chichewan ‘oohs’ and ‘aahs’ accompanying in force.
And at the very end of all this, Magdalena’s mother singled me out, herself and her daughter beaming from ear to ear, to the cheers of the other mothers.
“
Dikirani! (Wait!)” I called out as they turned to leave, “Magdalena, how are you?”
With an enormous grin she spun around and in her proudest English she yelled, “I’m fine, and how are you?”